遇见数据集

Transparency of 157 patient and consumer groups’ websites.

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NIAID Data Ecosystem2026-03-07 收录
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*organizations not included in other categories: e.g. growth hormone deficiency, psoriasis, inflammatory bowel disease, osteoporosis, prevention of blindness. **reference varies among organizations: some describe the activities funded in detail, others only mention them. Some report this information only in brochures of events or activities. °percentages refer to the organizations reporting funded activities. More than one answer was possible. The transparency of patient and consumer groups’ websites was assessed in terms of: disclosure of drug companies providing funds, amount of funds, activities funded; accessibility of sponsorship information; availability of a code of conduct about sponsorship; links to drug companies’ websites; presence of banner advertisings; clear separation of marketing content; availability of a financial report. Disclosure information are reported for all the groups and by disease of interest.

创建时间:
2012-05-09
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