Additional file 3 of Self-reported functioning among patients with ultra-rare nemaline myopathy or a related disorder in Finland: a pilot study

Name: Additional file 3 of Self-reported functioning among patients with ultra-rare nemaline myopathy or a related disorder in Finland: a pilot study
Creator: Lehtokari, Vilma-Lotta; Tammepuu, Marianne; Wallgren-Pettersson, Carina; Similä, Minna; Hiekkala, Sinikka; Strang-Karlsson, Sonja
Published: 2024-08-14T00:00:00+08:00

Figshare2024-08-14 更新2026-04-08 收录

线状体肌病功能评估

患者报告结局测量

数据链接：

https://springernature.figshare.com/articles/dataset/Additional_file_3_of_Self-reported_functioning_among_patients_with_ultra-rare_nemaline_myopathy_or_a_related_disorder_in_Finland_a_pilot_study/26647911/1 数据链接链接失效反馈

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资源简介：

Additional file 3: The mean values and ranges of T-values for the PROMIS-instrument based functioning. The levels of functioning defined by the Promis Health Organisation and the percentages show the proportion of the patient's level in each group.

提供机构：

Lehtokari, Vilma-Lotta; Tammepuu, Marianne; Wallgren-Pettersson, Carina; Similä, Minna; Hiekkala, Sinikka; Strang-Karlsson, Sonja

创建时间：

2024-08-14