Analysis of Informative Content on Cerebral Palsy Presented in Brazilian-Portuguese YouTube Videos

Aims: To describe the characteristics of the most accessed YouTube videos in Brazilian-Portuguese on cerebral palsy (CP), and to analyze content of informational videos about this topic. Methods: This was a cross-sectional study. Searching on YouTube website was conducted by two independent examiners between November and December 2019, using the keywords “Paralisia Cerebral” sorted by videos’ number of views. Videos that did not present content related to CP or duplicate videos were excluded. The interaction parameters and content characteristics of the included videos were extracted. To access the trustworthiness and quality of informational videos, the modified Discern checklist and the Global Quality Score was used. Results: Following the eligibility criteria 90 videos were included. Fifty-three (53) were classified as experiential videos and 37 as informational videos. Informational videos presented multi-topics about different aspects of CP. This group of videos presented moderate trustworthiness due to the lack of scientific evidence content. Informational videos had good quality and generally good flow. Conclusion: YouTube presented a large number of videos about CP in Brazilian-Portuguese. Informational videos are useful for patients and healthcare providers; however, it is necessary to included information about scientific evidence, as a strategy to facilitate and promote knowledge translation.研究目的：旨在描述巴西葡萄牙语平台YouTube上访问量最高的脑瘫（cerebral palsy，CP）相关视频的特征，并分析该主题的资讯类视频内容。研究方法：本研究为横断面研究。2019年11月至12月期间，由两名独立评估人员在YouTube网站上以巴西葡萄牙语关键词"Paralisia Cerebral"进行搜索，并按视频播放量排序。排除与脑瘫无关及重复的视频，提取纳入视频的互动参数与内容特征。为评估资讯类视频的可信度与质量，本研究采用改良版Discern核查表（Discern checklist）与全球质量评分（Global Quality Score）。研究结果：经纳入标准筛选后，共纳入90条视频。其中53条归类为体验类视频，37条归类为资讯类视频。资讯类视频涵盖脑瘫的多维度相关主题。因缺乏科学证据内容，该类视频的可信度处于中等水平。资讯类视频质量良好，整体逻辑流畅。研究结论：巴西葡萄牙语平台YouTube上存在大量脑瘫相关视频。资讯类视频对患者与医疗保健从业者具有实用价值，但需补充科学证据相关内容，以此作为促进知识转化的策略。