Establishing a Sickle Cell Disease Registry in Africa: Experience From the Sickle Pan-African Research Consortium, Kumasi-Ghana

Establishing a Sickle Cell Disease Registry in Africa: Experience From the Sickle Pan-African Research Consortium, Kumasi-Ghana

搜集汇总

背景与挑战

背景概述

该数据集记录了在非洲建立镰状细胞病（SCD）登记处的实践经验，源自加纳库马西的镰状细胞泛非洲研究联盟（SPARCo）项目。内容聚焦于登记处的建立流程、面临的挑战及初步成果，旨在为非洲SCD流行病学研究和患者管理提供数据基础。